iamtheinvisiblehand

Archive for October 2012

My mother was diagnosed with cholangiocarcinoma last week, after an endless month of tests, scans and appointments with the entire gamut of specialists.

For those who don’t know, cholangiocarcinoma is one of the most aggressive types of cancer. My mother’s is in the liver and metastasis was found in the peritoneum. It appears that the tumor that is in the liver is in the one place that makes it impossible to operate. Those in the peritoneum are rarely operated. So, chemotherapy it is. Starting today. The oncologist ordered 3 rounds of chemo and after that she’ll be tested again to check for improvement. If there is any, chemo will continue. If not, we’ll just have to let the cancer take over.

I know chemotherapy has come a long way and that nowadays, the treatment is a lot “milder” than it was a few years ago, but still, I can only imagine how she’s going to feel, being the person she is.

I’m not particularly attached to her, or my sisters for that matter, and I don’t feel that this has brought us closer, as many people in this same situation like to say.

My mother is as close as you can get to being Marie Barone (from Everybody Loves Raymond), so she enjoys feeling in control, having us all together at her disposal and being the center of attention. I don’t mean to sound nasty but it’s true. She has told every single relative, friend and acquaintance about her condition and although I can understand why she’s done it (besides being entitled to deal with this as she pleases), I truly wish she hadn’t, because now it means that she has made the cancer the main event of her life and has to rehash it every single time she’s with someone.

I’m not sure if she has come to terms with the fact that although this is a huge beast, half the task is becoming aware that she has the power to get rid of it by staying positive. Cancer survivors always say that a positive attitude can go a long way towards recovery. Of course, easier said than done, especially considering that my mother might be the most pessimistic person on the planet. It’s so bad that we’re always telling her to move her dark clouds away from us whenever she makes one of her ominous comments.

Our sisters and I have approached this from our unique perspectives and considering our own individual relation with our mother. My eldest sister feels quite dependent on her, so everything that has happened has affected her deeply. I can tell she’s truly scared. My other sister, the doctor, is approaching this like the doctor she is, meaning that she knows the facts better than we do, and she knows the outlook is grim, but she’s doing her part all the same. My youngest sister is probably the most affected, because she lives with my mother and is doing everything in her power to change my mother’s lifestyle into a healthier one, so if it doesn’t work I know she’ll be crushed. That, added to the fact that she is probably the closest to her.

Me? Hmmm. I haven’t really changed anything in my behavior or attitude. I’ve become weary of the manipulation, the phone calls every single day and the pleads for closeness, so although I hate that this is happening, I haven’t felt the need to come closer or reconcile or even mend our relationship.  I’ve come to terms with this.

I’ve been told repeatedly that I’ll regret this. But as I said, I came to terms with my relationship with my mother a long time ago. It’s far from perfect, but I’ve overcome the resentment, the anger and the disappointment I felt when I was younger and have settled for a cordial relationship. And I’m ok with it. She’s my mother and I love her and now that I’m a mother myself I know how hard it can be and I’m sure she did her best. But that is it.

Funny though, I never thought of myself as a selfish person, and yet all I can think about is how I’ll be affected if my mother dies. It kills me that my daughter won’t be able to enjoy her grandma for as long as she should have. It saddens me that my mother sacrificed so much for her own mother and that when she finally had the chance to do what she wanted she got diagnosed with cancer. That she had to put up with so much in her life already and not feel as appreciated as she thinks she should be.

I’m not a religious person, but I do have faith that my mother’s condition will improve. I refuse to believe that a person who has been deprived of living her own life for so long on account of others will now be deprived of it on account of cancer. Life’s not fair, I’m well aware of that, but that would be just plain horrific and would change our take on life radically. For the worse. Living with the knowledge that hope is useless would just make everyday a little more difficult.

All wake-up calls are harsh and abrupt, especially when they are received close to home. I’m taking this as a reminder not to let life get in the way of living it. To realize that it’s ok to strive for improvement while still appreciating the life I have. To leave my stuff in order so that no one will have to make any decision for me and my daughter will have everything she’ll ever need in my absence. To definitely take better care of myself and my family.

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  • None
  • Carrie Rubin: I don't always remember names well, but I remember circumstances. I especially remembered yours because it's such a rare cancer, and you were the firs
  • iamtheinvisiblehand: Thank you for your kind words, but also thank you for remembering it was me....it's amazing that you'd remember this considering the endless stream of
  • Carrie Rubin: I am so sorry to hear about your mother. After you commented on my blog yesterday, I remembered that your mother was the one who had cholangiocarcinom

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